NKH Community Support
We no longer have the NKH forum. Once we were the only source of support, but today when everyone is connected by social media, the support groups have moved to facebook.
You can find information and other families affected by Nonketotic Hyperglycinemia (NKH) at:
Facebook Support Groups
- Dr Johan Van Hove, Uni of CO, USA
- Prof Nick Greene, UCL, UK
- Dr Kasturi Halder, Uni of Notre Dame, US